Loukisha Olive McCoy , 44,  left of center has hereditary angioedema (HAE), a rare, life-threatening disease. Keeping her alive is a job for her entire family. Here, the family sits in the reception area before an appointment at The US HAEA Angioedema Center at UC San Diego in San Diego.

Alayah McCoy, 13, leans on her mom at their home in Chino, Calif.

Loukisha talks about her infusion medication.

Alayah helps prepare her mother's medication for her drug transfusion. The transfusion happens weekly at their home.

Alayah hugs her mother after completing the drug transfusion at their home.